Amazing Story 12-17-09

I was in a store in Harrisburg PA called The Catholic Shop.
I was looking at auto visor clips of St Christopher, Sacred Heart etc, when an elderly lady comes up beside me, also looking at clips.
She suddenly grabs my arm, asks me for my first name and after I told her she said "I don't know what your issue is, but I will pray for you Daniel"
I then told her my and my son's issues and she hugged me and repeated that she will pray for us.

God does work in different ways.

Doctor Visit 12-16-09

We met with Dr Jiang today.
My echocardiogram was good, no signs of any heart problems.
My CTScan was also good. The growth in the esophagus is about the same, no bigger and no smaller. I guess I'll take that.
The good news was that the lymph nodes are "tiny" to quote the good doctor.
I will start the chemo regimen again on Monday. Both the direct infusion and the pills.

All in all a pretty good meeting.

Just came back from the community room at our local Giant Supermarket where the Leukemia and Lymphoma Society was meeting to plan next year's fundraising and events.
The keynote speaker was Danny and he did a GREAT job. I was crying!!!

Merry Christmas to ALL

Dan & Patricia

News on Danny

Dan's doctor said today that things look GOOD. His biopsy came back clean and he is on to stage 4 of his treatment. Could not have received a better outlook. He also thanked Dan for being a great patient and being educated.

Peace & Love to ALL

Dan

All will be well5K for Danny

Thank you to everyone who turned out to participate, volunteer or just be there.
The turnout and support could not have been better.
As the father involved, I still have tears in my eyes.

God Bless ALL.

Dan

Latest Update

I have been on the chemo pills instead of the pump (box) for 3 weeks.
I had a blood test yesterday and a doctor visit and was scheduled for my 4 to 4 1/2 hour infusion. The doc did not like my blood numbers and the multiple side effects from the pills (weeping eyes, runny nose, no strength, exhausted and out of breath with the least little bit of exertion) so she is giving me a 3 week break until I see her again. She will decide then when to resume therapy. I am somewhat happy that chemo was canceled because I was afraid of being nauseous and a recurrence of the hiccups for this weekend, too much going on what with Thanksgiving, the annual Black Friday movie outing with the trunk o' candy and most importantly, the 5k for Danny on Saturday.

I am scheduled for an echo cardiogram and a CT Scan on Wednesday so she can see what is going on inside of me (I have been trying to figure that out for years).

HAPPY THANKSGIVING TO ALL

PS: attached is the link to the channel 27 news story on the Dan Lyons'

http://www.whtm.com/news/stories/1109/681432.html

Resumed Chemo

Started the pills (no Box = HOORAY).
Also had my scheduled 4+ hours of other chemo on Thursday 11/5/09.
All went relatively well except the next two days (Friday and Saturday) I was nauseous and had hiccups most of the time. I am expecting that this is all do to not having the scheduled 4+ hrs of chemo for 6 weeks and starting to add a new drug into the mix.

Anything is better than having to wear the pump/box 24/7.

Thanks for all of the thoughts and prayers.

November 28 at Trinity High School in Camp Hill is the 5K run/walk for Danny.
http://danlyonsall.blogspot.com

If anyone can support in anyway - GOD BLESS YOU

Dan

CT Scan 11/03/09

Went to HMC for a CT Scan today. Drank the half gallon of the 'stuff' to make my insides show up.
Was finally called and they tried "5" times (twice in the right arm, once in the left arm and twice in the back of my left hand) to put an IV in my veins without success. They said that they could not use the port in my chest. I was sent to the main hospital where I was told they could access the port.
After one half hour there a nurse came by and said that they could not access the port and she would put an IV in my vein.

So I left....

Will discuss with the doctor during tomorrow's visit.

Not a fun night.