Sunday, December 26, 2010

CTScan on 12/22/10

We went to HMC on Wednesday and had a CTScan.
I talked to the head oncology nurse on Friday the 24th.
She informed us that the main mass in the esophagus showed no change but the lymph node by my spine showed some growth.
Unless she calls this week, we see the doctor on 1/12/11.

Hope everyone is enjoying this Holy season.

Love to ALL

Wednesday, December 15, 2010

Hershey Visit 12/15/10

Met with Dr. Jiang today. She canceled my chemo for 12/20/10 (much to my liking), is scheduling a CTScan and doesn't want (need) to see me for a month.
She also mentioned that my lymph node growths are "tiny".

All in all a GREAT visit.

Merry Christmas everyone and remember
Keep CHRIST in CHRISTmas.

Tuesday, November 9, 2010

Hershey 11/08/10



Had an abbreviated chemo treatment today. Dr. Jiang (Jen) canceled the 5fu drug because it seems to be having adverse prolonged side affects on my condition ( strength, stamina and breathing). She wasn't thrilled that I now weigh in at 166 lbs. If I don't pick up weight, I am not sure I agree with, she is thinking of implanting a stent in my esophagus in hopes I can eat easier. Other than that all seems to be going alright.
THANKS to ALL for prayers and thoughts. THEY DO HELP.


Dan

Wednesday, October 13, 2010

Week of October 11, 2010



On Monday the visiting nurse came to the house to replace the needle and chemo cartridge for the 5fu 24/7 treatment. This was the beginning of week 3 of the 3 week schedule.
The nurse also had blood drawn for testing.

I received a call from the head oncology nurse at Hershey Cancer Institute around 4:30 PM informing me that my white blood cells were too low to receive chemo and she would arrange for someone to come to the house and remove the chemo and needle.
Nobody contacted me after that, so I called the nurse at Hershey and left a message.
She called back around 8:15 AM and was shocked that I was still receiving chemo.
Around 9:30 AM the visiting nurse arrived and removed the pump (box) that was attached for the last two weeks.

I had an appointment with Dr Jiang on Wednesday at 3:00 PM.
She decided to give me a break for a few weeks and I go back to see her on November 5th.
She scheduled me for the standard in hospital treatment on Nov 8th.
Good news to me is that she is considering not putting me back on the 24/7 pump.

Thanks to ALL for thoughts and prayers!

Friday, October 1, 2010

Hershey Cancer Institute 9/27/10



Nothing too much to say. I did have the chemo treatment and I am attached to the pump until 10.18.10. I will then get a week off and get another treatment and be reattached for 3 weeks.

The treatment is the original "cocktail" that I started with last year. It did give me hiccups for 2 days, which is murder.

I see the Dr on the 13th for further words of wisdom.

THANKS to ALL

Thursday, September 2, 2010

Hershey Cancer Institute 9/1/10



We met with Dr. Jiang to review the results of Monday's CTScan.
Lymph node's have grown (minimally), but she is worried about one that is right next to my spine.
So, the day after we return from Notre Dame (9/27/10) I will have 4+ hours of chemo and have the pump attached for two 21 day cycles (24/7).
I expected nothing but good news after the 4 treatments that we just went through, so I am not a happy camper right now. BUT this will pass and WE WILL NOT LET THIS BEAT US!!!

Thanks for the prayers, comments and thoughts.
Peace, Love and God Bless America.

Wednesday, August 25, 2010

Hershey Cancer Clinic 8/24/10



Well another day another treatment.

My doctor upped the dosage this time (not sure why she dropped it last time). If it kills more bad stuff, all the better.
It was a long day. We arrived around 11:30 AM and left at 6:30 PM and I have the pump attached until 4:00 PM on 8/26/10.

Nothing much else to report. The nurses are all really nice, supportive and informative about the drugs. They also all ask for Danny and Hanna.

I am scheduled for a CTScan on 8/30/10 and a doctor's visit on 9/1/10.

Then we are off to DisneyWorld on 9/5/10.

We NEED it.

Thanks to all for prayers, support and thoughts!!!

Wednesday, August 11, 2010

Hershey Cancer Clinic 8/10/10



Well, I guess the third time is the charm.
Had the full treatment (listed in previous posts) for the third of four cycles.
I am scheduled again for 8/24/10.
If all goes well then, I will have a CT Scan pn 8/30/10 and see the results with the Dr. on 9/1/10.
And IF ALL GOES WELL - off to Disneyworld on 9/5/10 returning on 9/11/10.

Thanks once again for the thoughts and prayers.

Dan & Pat

Tuesday, August 3, 2010

Update 8-3-10

Failed to get chemo for the second time. First time was a low platelet count. Second time was a high heart rate and heavy chest congestion. They prescribed Cipro and Robitussin for the congestion.
I am scheduled to try again on 8-10-10.

If all goes well, I will be finished with this round on 9-1-10.

Thanks to all

Dan

Friday, July 9, 2010

Hershey Cancer Clinic 7/8/10

Hello ALL,
Pretty much the same update as 6/24/10.
A different nurse came by the infusion room to see which Dan Lyons was there.
She said to say hello to Danny and to tell him that Georgetown Hospital was one of the best for his treatment.

Well I had the second of four treatments today at Hershey and the visiting nurse came to the house to hook me up with a chemo pump. I wear the pump for 46 hours and then the nurse will come back to remove it until my next treatment which is scheduled for 7/22/2010.

Here is a list of the medications that I received today and will
continue with the one that is listed last until Saturday at around 3:25 PM.

Ondansetron (16mg) is used to prevent nausea and vomiting caused by cancer chemotherapy, radiation therapy and surgery. Ondansetron is in a class of medications called 5-HT3 receptor antagonists. It works by blocking the action of serotonin, a natural substance that may cause nausea and vomiting.

Dexamethasone (20 mg) is a member of the glucocorticoid class of hormones. This means they are steroids but, unlike the anabolic steroids that we hear about regarding sports medicine, these are "catabolic" steroids. Instead of building the body up, they are designed to break down stored resources (fats, sugars and proteins) so that they may be used as fuels in times of stress. Cortisone would be an example of a related hormone with which most people are familiar, though cortisone (more correctly called "cortisol") is a natural hormone produced by the body's adrenal glands whereas dexamethasone is synthetic.

Calcium Gluconate (1gm) is the calcium salt of gluconic acid, an oxidation product of glucose, and contains 9.3% calcium, which is about one-third of the calcium in strength of calcium chloride USP.

Magnesium sulfate (8mEq) (or magnesium sulphate) is a chemical compound containing magnesium, sulfur and oxygen, with the formula MgSO4. In its hydrated form, the pH is 6.0 (5.5 to 6.5). It is often encountered as the heptahydrate, MgSO4·7H2O, commonly called Epsom salt. Anhydrous magnesium sulfate is used as a drying agent. Since the anhydrous form is hygroscopic (readily absorbs water from the air) and is therefore difficult to weigh accurately, the hydrate is often preferred when preparing solutions, for example in medical preparations. Epsom salt has been traditionally used as a component of bath salts.

Oxaliplatin (170 mg) is a coordination complex that is used in cancer chemotherapy. These platinum-based drugs are usually classified as alkylating agents, although they are actually alkylating groups (they function by a similar mechanism)

Leucovorin (700) is used to prevent harmful effects of methotrexate (Rheumatrex, Trexall; cancer chemotherapy medication) when methotrexate is used to treat certain types of cancer. Leucovorin is also used to treat people who have accidentally received an overdose of methotrexate or similar medications. Leucovorin is in a class of medications called folic acid analogs. It works by protecting healthy cells from the effects of methotrexate or similar medications while allowing methotrexate to enter and kill cancer cells.

Fluorouracil
or 5FU (800 mg) is one of a large group of drugs known as "antineoplastics"; these drugs are also known as cancer drugs, chemotherapy or "chemo". They are used in the treatment of various cancers to slow or stop the growth of cancer cells. A combination of different types of cancer drugs will often be used to achieve better results and minimize side effects.

Fluorouracil or 5FU (4800 mg) is one of a large group of drugs known as "antineoplastics"; these drugs are also known as cancer drugs, chemotherapy or "chemo". They are used in the treatment of various cancers to slow or stop the growth of cancer cells. A combination of different types of cancer drugs will often be used to achieve better results and minimize side effects.
- This is the one in the pump until 4:30 PM Saturday 6/26/2010 -

Thursday, June 24, 2010

Hershey Cancer Clinic 6/24/2010

Well I had the first of four treatments today at Hershey and the visiting nurse came to the house to hook me up with a chemo pump. I wear the pump for 46 hours and then the nurse will come back to remove it until my next treatment which is scheduled for 7/8/2010.

Here is a list of the medications that I received today and will continue with the one that is listed last until Saturday at around 4:30 PM.

Ondansetron (16mg) is used to prevent nausea and vomiting caused by cancer chemotherapy, radiation therapy and surgery. Ondansetron is in a class of medications called 5-HT3 receptor antagonists. It works by blocking the action of serotonin, a natural substance that may cause nausea and vomiting.

Dexamethasone (20 mg) is a member of the glucocorticoid class of hormones. This means they are steroids but, unlike the anabolic steroids that we hear about regarding sports medicine, these are "catabolic" steroids. Instead of building the body up, they are designed to break down stored resources (fats, sugars and proteins) so that they may be used as fuels in times of stress. Cortisone would be an example of a related hormone with which most people are familiar, though cortisone (more correctly called "cortisol") is a natural hormone produced by the body's adrenal glands whereas dexamethasone is synthetic.

Calcium Gluconate (1gm) is the calcium salt of gluconic acid, an oxidation product of glucose, and contains 9.3% calcium, which is about one-third of the calcium in strength of calcium chloride USP.

Magnesium sulfate (8mEq) (or magnesium sulphate) is a chemical compound containing magnesium, sulfur and oxygen, with the formula MgSO4. In its hydrated form, the pH is 6.0 (5.5 to 6.5). It is often encountered as the heptahydrate, MgSO4·7H2O, commonly called Epsom salt. Anhydrous magnesium sulfate is used as a drying agent. Since the anhydrous form is hygroscopic (readily absorbs water from the air) and is therefore difficult to weigh accurately, the hydrate is often preferred when preparing solutions, for example in medical preparations. Epsom salt has been traditionally used as a component of bath salts.

Oxaliplatin (170 mg) is a coordination complex that is used in cancer chemotherapy. These platinum-based drugs are usually classified as alkylating agents, although they are actually alkylating groups (they function by a similar mechanism)

Leucovorin (700) is used to prevent harmful effects of methotrexate (Rheumatrex, Trexall; cancer chemotherapy medication) when methotrexate is used to treat certain types of cancer. Leucovorin is also used to treat people who have accidentally received an overdose of methotrexate or similar medications. Leucovorin is in a class of medications called folic acid analogs. It works by protecting healthy cells from the effects of methotrexate or similar medications while allowing methotrexate to enter and kill cancer cells.

Fluorouracil
or 5FU (800 mg) is one of a large group of drugs known as "antineoplastics"; these drugs are also known as cancer drugs, chemotherapy or "chemo". They are used in the treatment of various cancers to slow or stop the growth of cancer cells. A combination of different types of cancer drugs will often be used to achieve better results and minimize side effects.

Fluorouracil or 5FU (4800 mg) is one of a large group of drugs known as "antineoplastics"; these drugs are also known as cancer drugs, chemotherapy or "chemo". They are used in the treatment of various cancers to slow or stop the growth of cancer cells. A combination of different types of cancer drugs will often be used to achieve better results and minimize side effects.
- This is the one in the pump until 4:30 PM Saturday 6/26/2010 -

It was a long day, but all of the nurses involved were really good and caring. One nurse who was assigned to a different area saw the name Daniel Lyons on the list of treatments today and stopped by the room I was in to say hello and ask about Danny. They miss having the two Dans around but are also very happy the treatments are becoming few and far between.

Friday, June 18, 2010

Hershey visit on 6/18/2010

I had a CT Scan on the 17th and a visit with my oncologist today.
The two lymph nodes near my throat seem to have disappeared.
There is new activity (growth) next to the original mass.
Ii is close to my spine which worries the doctor. She is afraid that if it grows much more it will start to press against my spinal cord and cause back pain.
So, we start chemo next week and every two weeks for four sessions. Then there will be another CT Scan to see what improvement is being made.
One drawback to this schedule is that after each session I have to wear a chemo pump for 46 hours straight. I guess that is better than 24 x 7 indefinitely.
So there was some good news today. The focus has to be on the good.

Thank you for the support and prayers - keep it going.

Love and Peace to ALL

Thursday, April 22, 2010

Thursday April 22 2010

Nothing much to report. It has been a tremendous month. Danny and Hanna were blessed with a perfect day for the wedding. EVERYTHING went as planned and as a parent, I could not be happier.

My chemo treatment is still on hold. I will have a CT Scan in June to determine when or if I start chemo again.
My wonderful and always there bride will be retiring on April 30th and I look forward to many years of us hanging out and maybe a trip or two to Disney.

Sorry for the boring post, I am happy with life the way it is right now.

Friday, March 26, 2010

Today at Hershey Cancer Institute 3/26/10

Went for blood work early today and an appointment with Dr Jiang at
11:15 AM.
Three weeks ago she had discussed the possibility of return to the pump
that needs to be worn 24/7.
For about 5 days Patricia and I were formulating our speech for
this visit, because we wanted to give the pills (xeloda) another chance
and NO PUMP!!!

Well the good doctor fooled us. She decided that I should have a CT
Scan next week and another one mid June and she will compare them. So,
I am not on any chemo at least until I see her in June.

As long as nothing looks new or larger in the CT Scans, I am off of
chemo indefinitely.

Wednesday, February 24, 2010

Update

Well, all of a sudden I am breathing normally and my appetite is almost normal.
I think that the break from Xeloda has helped and it is finally out of my system.
I see the doctor again on March 5th, I think she will change my medication. We will see what happens then.
Thanks for the thoughts and prayers.

Dan

Saturday, February 13, 2010

Short of Breath

The past couple of weeks have not been fun. I have been exhausted and totally out of breath. After several tests, it was decided that I needed another blood transfusion. I went in on Friday and was admitted to HMC. I checked in at 10 AM and was released at 7:15 PM. The longest transfusion that I have heard of to date. I seem to feel better, but I am scheduled for a Pulmonary Function Test, a Blood Test and a visit with the doctor next Friday. The doctor seems to be concerned that my blood counts are not low enough for my shortness of breath.
More to come come next week.

THANKS for the thoughts and Prayers

Dan

Monday, January 25, 2010

Trying Weeks

After two visits to the ER at HMC, they finally conceded that I was receiving too much chemo.
They told me to stop my xeloda meds until further notice.
In the meantime, I have had three "bad" blood tests. On last Thursday I was told that "my blood numbers were in the toilet". The next two tests were not as good as that one.
My cell counts are so low that I have basically been housebound since I can not come in contact with people for fear of infection.
I go back on the 27th for another blood test. If not good, I suspect a transfusion.

In the meantime, HAPPY ANNIVERSARY to my bride Patricia.
COULD not get through this without YOU.

Saturday, January 9, 2010

Interesting Week

On Wednesday, I went for blood work and we had a visit with Dr Jiang. The visit went really well, I looked and felt great and the doctor was impressed and decided that we should keep on with the chemo schedule.

THEN - On Wednesday evening I had some dinner and took my pills (xeloda).
I was immediately weak in the knees, short of breath and dizzy. I could not stand up or walk across the room without holding on to furniture. Went to bed real early thinking that a good night's sleep was needed. Did not sleep. Conditions did not improve on Thursday and the breathing was getting worse, I could not talk for a minute and a half without gasping for air. Tried to get a good night's sleep with no luck.

On Friday morning I called my contact at HMC only to find out that she started a ten day vacation on Friday. Her backup called me and we discussed my condition. My thought was to stop all chemo for three weeks (when we see the doctor again). She told me that she would discuss this with the oncology staff and get back to me. She called back and told me to get to an emergency room immediately to check for any life threatening symptoms and I was not permitted to drive. If I wanted, she would dispatch an ambulance from Hershey, but I could go to any ER I wanted.

I called my wonderful wife Patricia, who immediately left work. We went to HMC since that is who had all of my records.

After a chest X-Ray, EKC, CT Scan and blood was drawn, we waited.
All tests came back negative except the blood work. That showed a low blood count. The decision was made to transfuse me with two units of blood.

So we spent from 11:30 Am to 7:45 PM in the ER, but I must admit that I have been feeling better since the visit. I have resumed my pills with no symptoms.

Thank you ALL for the thoughts and prayers

Dan & Patricia